It started with nausea, vomiting, and fainting.
I was treated for ulcerative colitis.
Then endometriosis and depression.
They said it was all in my head.
It’s not.
It’s acute hepatic porphyria.
If you suspect symptoms of AHP, it’s important to talk with your doctor. The Doctor Discussion Guide will help you have a conversation about AHP and discuss available treatment options.
Download Discussion GuideCOULD IT BE ACUTE HEPATIC PORPHYRIA (AHP)?
Have you ever had severe, unexplained abdominal pain, along with at least 1 other symptom? It could be limb, back, or chest pain, nausea, vomiting, confusion, anxiety, seizures, weak limbs, constipation, diarrhea, or dark or reddish urine.
The experience may have sent you on repeat doctor or hospital visits over the years, often resulting in different suspected diagnoses.
If this sounds at all familiar, it may be a family of rare genetic diseases called Acute Hepatic Porphyria, or AHP.
AHP is a disease that people may experience differently. It has a wide array of symptoms that often mimic those of other diseases, making diagnosis difficult. AHP can even cause potentially life-threatening attacks.
The good news is there are experienced experts who can help diagnose the condition. Find educational resources and information on this site, plus information on connecting you with doctors who can help.
Download the Doctor Discussion Guide for more information on testing and diagnosis.
TWO OF ME: LIVING WITH PORPHYRIA
A story of human strength, perseverance and survival, chronicling the lives of seven people around the world living with AHP.
Watch Documentary